Just a few moments of your time
Granny Maureen and Georgia
July 2007
It was to be a normal birth,
no complications were expected and the precious little girl was to be a very
welcome addition the happy little family. On 11 July 2005,Georgia May came intothe world. Georgia was an apparently faultless bouncing baby, all 10 fingers and a full set of 10 perfect tiny toes. Plump little cheeks, big blue eyes and on her head an abundance of curly red hair. She was so loved. She IS so loved.
LittleGeorgia May is my beautiful grand daughter, she lives in England with my son,his wife Laura and her big brother Dillon. Proud Mommy Laura had huge plans for her little princess and the life she would lead. She would be Mommy’s best friend. Together they would share mother daughter secrets, go shopping and one day she would get a driving licence and one far off day…be a bride. Sadly, God’s plan for little Georgia May ran a totally different path and when their tiny baby was diagnosed with Dravets Syndrome their life as they new it and their happy plans for their daughter were shattered
Perfect little Georgia May with the shock of red hair and the twinkling eyes began to have frequent febrile seizures sometimes lasting a horrifying thirty minutes, sometimes more.
Colin and Laura’s life plan for their little daughter changed in a moment and hospital visits not visits to the zoo became the new normal. Hours, days and weeks were spent anxiously waiting while first one doctor then the next struggled to find an explanation for why the infant had started to have seizures. As Georgia grew so did the frequency of the seizures and still no diagnosis. By the time she was two years old it had become clear that Georgia’s development had been seriously impaired. The hyperactive toddler has never said“mummy” or “Daddy, Georgia has no language skills and possibly never will. The happy little girl has difficulty relating to others and is content to sit in seclusion, a solitary life, sensory dependant reacting to light and textures. Georgia May has no concept of danger, climbing running and falling are just “things she does”. She doesn’t cry. She doesn’t have tantrums. Anger seems to be an emotion that God decided she didn’t need. She is a happy loving little soul. Her hyperactivity and incredible strength are becoming a challenge to the young parents as their daughter matures physically into a 6 year old girl, yet having a mental age of just a few months. Young Dillon, her big brother, doesn’t have a playmate. His younger sister is forever a baby and much of his childhood has been overshadowed by Georgia’s condition.
Colin and Laura love their little daughter, rejoicing at every little achievement and working through each disappointment but Georgia May’s future is uncertain and children with Dravets Syndrome die every day for unexplained reasons. Colin Laura and Dillon have good reason to pray for research to extend their daughters life expectancy along with all the other children worldwide, suffering the symptoms of this debilitating syndrome.
Dravets Syndrome is caused by defects in a gene required for the proper function of the brain and in a lottery of one in a million chance, our little Angel was chosen to be different. Many researchers are struggling to find some way of helping these children, many of whom die before they reach puberty.
Research costs money and in these days of International financial insecurities funding is low. Several parents of children suffering from Dravets Syndrome have collectively decided to try to raise some money to encourage research. I invite you to read my son’s request, imagine you are the parent of such a child and appeal to you to reach into your hearts to help the cause. Thank you,
All donations large and small will be very much appreciated, we understand that this is not a time when it is easy to donate, charity begins at home BUT these childrens lives are unfulfilled and often very short, please find it in your hearts to help. Greg and I are in the process of setting up a central collection point. If you feel you could donate, please call us. Our number is on the home page. Every cent will be very much appreciated. To donate in the name of Georgia and Colin go to
www.justgiving.com/Colin-Earnshaw
Thank you, EVERY cent will go to the Dravet Syndrome Society for research.
Maureen.
no complications were expected and the precious little girl was to be a very
welcome addition the happy little family. On 11 July 2005,Georgia May came intothe world. Georgia was an apparently faultless bouncing baby, all 10 fingers and a full set of 10 perfect tiny toes. Plump little cheeks, big blue eyes and on her head an abundance of curly red hair. She was so loved. She IS so loved.
LittleGeorgia May is my beautiful grand daughter, she lives in England with my son,his wife Laura and her big brother Dillon. Proud Mommy Laura had huge plans for her little princess and the life she would lead. She would be Mommy’s best friend. Together they would share mother daughter secrets, go shopping and one day she would get a driving licence and one far off day…be a bride. Sadly, God’s plan for little Georgia May ran a totally different path and when their tiny baby was diagnosed with Dravets Syndrome their life as they new it and their happy plans for their daughter were shattered
Perfect little Georgia May with the shock of red hair and the twinkling eyes began to have frequent febrile seizures sometimes lasting a horrifying thirty minutes, sometimes more.
Colin and Laura’s life plan for their little daughter changed in a moment and hospital visits not visits to the zoo became the new normal. Hours, days and weeks were spent anxiously waiting while first one doctor then the next struggled to find an explanation for why the infant had started to have seizures. As Georgia grew so did the frequency of the seizures and still no diagnosis. By the time she was two years old it had become clear that Georgia’s development had been seriously impaired. The hyperactive toddler has never said“mummy” or “Daddy, Georgia has no language skills and possibly never will. The happy little girl has difficulty relating to others and is content to sit in seclusion, a solitary life, sensory dependant reacting to light and textures. Georgia May has no concept of danger, climbing running and falling are just “things she does”. She doesn’t cry. She doesn’t have tantrums. Anger seems to be an emotion that God decided she didn’t need. She is a happy loving little soul. Her hyperactivity and incredible strength are becoming a challenge to the young parents as their daughter matures physically into a 6 year old girl, yet having a mental age of just a few months. Young Dillon, her big brother, doesn’t have a playmate. His younger sister is forever a baby and much of his childhood has been overshadowed by Georgia’s condition.
Colin and Laura love their little daughter, rejoicing at every little achievement and working through each disappointment but Georgia May’s future is uncertain and children with Dravets Syndrome die every day for unexplained reasons. Colin Laura and Dillon have good reason to pray for research to extend their daughters life expectancy along with all the other children worldwide, suffering the symptoms of this debilitating syndrome.
Dravets Syndrome is caused by defects in a gene required for the proper function of the brain and in a lottery of one in a million chance, our little Angel was chosen to be different. Many researchers are struggling to find some way of helping these children, many of whom die before they reach puberty.
Research costs money and in these days of International financial insecurities funding is low. Several parents of children suffering from Dravets Syndrome have collectively decided to try to raise some money to encourage research. I invite you to read my son’s request, imagine you are the parent of such a child and appeal to you to reach into your hearts to help the cause. Thank you,
All donations large and small will be very much appreciated, we understand that this is not a time when it is easy to donate, charity begins at home BUT these childrens lives are unfulfilled and often very short, please find it in your hearts to help. Greg and I are in the process of setting up a central collection point. If you feel you could donate, please call us. Our number is on the home page. Every cent will be very much appreciated. To donate in the name of Georgia and Colin go to
www.justgiving.com/Colin-Earnshaw
Thank you, EVERY cent will go to the Dravet Syndrome Society for research.
Maureen.
Letter of Request from Colin
Hiya mum,
If you look at the dravet site,
Dravet.org/uk
which holds all the information and are the main backers behind the drive to raise £10,000 towards research into the syndrome. All funds are to be raised by parents throughout the uk,with a team of 24 climbing Ben Nevis which is the highest mountain in the UK. I know its a big ask to involve you with whats going on with you at the moment but this research is so important. Last night at 0400am new years day another Dravet child of 14 lost his life for no reason except what they call SUDEP or sudden death through epillepsy. Reasearch into how and why this occurs is where this money is earmarked for. Please see if any friends or former work colleagues maybe able to help by sending donations to a central point and then sending them over here nearer the time. The event is in June this year. To donate for Colin's effort go to
www.justgiving.com/Colin-Earnshaw ( Please NOTE. donations DO NOT go to Colin, they will go straight to the Dravet Syndrome org. PLEASE be generous.
lots of love to you both
Colin
If you look at the dravet site,
Dravet.org/uk
which holds all the information and are the main backers behind the drive to raise £10,000 towards research into the syndrome. All funds are to be raised by parents throughout the uk,with a team of 24 climbing Ben Nevis which is the highest mountain in the UK. I know its a big ask to involve you with whats going on with you at the moment but this research is so important. Last night at 0400am new years day another Dravet child of 14 lost his life for no reason except what they call SUDEP or sudden death through epillepsy. Reasearch into how and why this occurs is where this money is earmarked for. Please see if any friends or former work colleagues maybe able to help by sending donations to a central point and then sending them over here nearer the time. The event is in June this year. To donate for Colin's effort go to
www.justgiving.com/Colin-Earnshaw ( Please NOTE. donations DO NOT go to Colin, they will go straight to the Dravet Syndrome org. PLEASE be generous.
lots of love to you both
Colin
